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Toronto Rehab researchers helped lead the creation of Canada's top 10 dementia research priorities taking input from more than 1,200 people including those living with dementia, friends and family, caregivers, clinicians and advocates.
The Canadian Dementia Priority Setting Partnership was created through collaboration between the Alzheimer Society of Canada, the Canadian Consortium on Neurodegeneration in Aging, the University Health Network, the James Lind Alliance and partner organizations across Canada.
The consultation process was co-led by Dr. Katherine McGilton, Senior Scientist, Toronto Rehab, and Dr. Jennifer Bethell, post-doctoral research fellow, Toronto Rehab.
"A key mandate of this initiative was to find out what people who have a personal connection to the disease would like to see researched," Dr. Bethell explained.
Added Dr. McGilton: "People living with dementia were keen to be involved."
The Partnership asked Canadians affected by dementia – either personally or through their work—for their unanswered questions about living with dementia, and dementia prevention, treatment and diagnosis. The responses were then prioritized through a two-stage process.
The priorities will be presented in a formal report that will go to partner organizations and research funders across Canada.
These were found to be the top 10 Canadian dementia research priorities:
The Canadian Dementia Priority Setting Partnership was funded by the Alzheimer Society Research Program as part of the Alzheimer Society's commitment to the Canadian Consortium on Neurodegeneration in Aging.