David Uzan, Senior Finance Business Manager, Toronto Rehab, is bringing the #lemonAID challenge to UHN to raise awareness about Angelman Syndrome. (Video: UHN)
When Na'ama Uzan was just four years old she learned what Angelman Syndrome was. It's the reason her brother doesn't talk, has hard-to-treat epilepsy, developmental delays, a sleep and movement disorder and difficulty walking.
Na'ama heard the only thing standing between a cure was funding.
She decided to raise money herself.
The five-year-old has set up lemonade stands since 2014, raising $50,000 for the
Foundation for Angelman Syndrome Therapeutics (FAST).
"Like many rare diseases, there are currently limited research dollars available to support a cure for Angelman Syndrome, yet so much evidence that a cure is within our reach," says David Uzan, Na'ama's father and Senior Finance Business Manager, Toronto Rehab.
"It is our hope that through the #lemonAID Challenge, there will be greater awareness regarding Angelman Syndrome across the globe, which would result in enhanced research dollars being made available."
Na’ama with Premier Kathleen Wynne after a press conference announcing Ontario Angelman Day (Photo: David Uzan)
Na'ama is calling for children around the world to help her raise the necessary money by hosting a lemonade stand this summer and donating proceeds to FAST.
She also encourages people to raise awareness about AS by sucking on a lemon and sharing the video or photo of your #lemonAID face on social media to spread the word.
David decided to bring the #lemonAID challenge to UHN. Watch the video
here.
Watch Na'ama's #lemonAID challenge
video.
Visit Na'ama's Facebook
page.
