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When Na'ama Uzan was just four years old she learned what Angelman Syndrome was. It's the reason her brother doesn't talk, has hard-to-treat epilepsy, developmental delays, a sleep and movement disorder and difficulty walking.
Na'ama heard the only thing standing between a cure was funding.
She decided to raise money herself.
The five-year-old has set up lemonade stands since 2014, raising $50,000 for the
Foundation for Angelman Syndrome Therapeutics (FAST).
"Like many rare diseases, there are currently limited research dollars available to support a cure for Angelman Syndrome, yet so much evidence that a cure is within our reach," says David Uzan, Na'ama's father and Senior Finance Business Manager, Toronto Rehab.
"It is our hope that through the #lemonAID Challenge, there will be greater awareness regarding Angelman Syndrome across the globe, which would result in enhanced research dollars being made available."
Na'ama is calling for children around the world to help her raise the necessary money by hosting a lemonade stand this summer and donating proceeds to FAST.
She also encourages people to raise awareness about AS by sucking on a lemon and sharing the video or photo of your #lemonAID face on social media to spread the word.
David decided to bring the #lemonAID challenge to UHN. Watch the video
Watch Na'ama's #lemonAID challenge
Visit Na'ama's Facebook