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The Elisabeth Raab Neurofibromatosis Clinic, the first-in-Canada multidisciplinary clinic for adults with neurofibromatosis that will focus solely on this genetic disorder, is now open at Toronto General Hospital, thanks to a generous donation by an anonymous donor.
An estimated 10,000 Canadians are living with neurofibromatosis, a disorder that disturbs cell growth in the nervous system. The disease can be difficult to diagnose, since all body systems can be involved, either directly or through neural or vascular influences.
The clinic will advance treatment and understanding of neurofibromatosis in three key areas:
The Elisabeth Raab Neurofibromatosis Clinic was spearheaded by Dr. Michael Baker, Rose Family Chair in Palliative Medicine and Complex Care at UHN, who passed the torch to Dr. Vera Bril, co-director of the clinic along with Dr. Gelareh Zadeh, a neuro-oncology neurosurgeon at Toronto Western Hospital.
"The clinic will offer a multidisciplinary team from neurology, neurosurgery, neuro-oncology, medical genetics and genetics counseling," says Dr. Bril who is also Head of Neurology, UHN and Interim Medical Director of the Krembil Neuroscience Centre.
"We must always look for ways to improve the care for patients who suffer from a chronic disease, and we now have that chance thanks to this incredible commitment from this generous donor."
"The opening of this clinic marks a new stage in treatment of adult neurofibromatosis," adds Dr. Zadeh. "We hope to move the field forward and have global impact by eventually curing neurofibromatosis,"