The Supportive Care Neurology Clinic is a neuro-palliative care clinic for patients diagnosed with a serious neurological illness. The clinic includes a palliative care doctor and an advanced practice nurse who provide an added layer of support to patients/families living with neurodegenerative disease.
We focus on supporting advance care planning conversations, thinking ahead about what matters most to you and what kind of medical care you would want in the future. This includes conversations about code status, preferences about hospitalization, feeding tubes, and anticipated changes as your disease progresses, such as difficulty swallowing. We work alongside your other healthcare providers to ensure your medical care reflects your wishes and values as your condition changes. We offer both in-person and virtual appointments.
Of note, palliative care is not just end-of-life care or hospice care. We support patients at all stages of disease and can be provided alongside ongoing treatment.
What We Do Not Do
We unfortunately do not have a social worker, and thus, we do not arrange or refer to home care and community supports, coordinate long-term care referrals or facilitate support groups. If you need assistance with these services, please speak with your primary care physician or primary neurologist.
Services
Advance Care Planning and Goals of Care Discussions
Advance care planning is a process to help support adults at any stage of health to understand and share what matters most to you in order to help inform future health care decisions. These are evolving conversations as values may change over time. Our goal is to ensure that patients receive medical care that is consistent with their underlying values and preferences.
A key component of this is identifying a Substitute Decision Maker (SDM) who is a trusted person to help make decisions for you in the event you are unable to.
We provide guidance on what you may expect over time as your disease changes and help you plan for important healthcare decisions in the future. This may include support with changes such as increasing difficulty with swallowing, exploring preferences for treatment of illnesses such as infections, and care preferences if you become critically ill and require life-sustaining treatments.