ALERT CONTENT PLACEHOLDER

Location

Contact

Hours

Location

Contact

Hours

Location

Contact

Hours

Location

Contact

Hours


Referrals

What We Do

We provide assessment for people with NF1, NF2-related schwannomatosis and schwannomatosis.

We can help with diagnosis of these conditions in case of unclear diagnosis. For patients with confirmed disease, we provide surveillance for manifestations of these diseases, as well as education, including genetic counseling. For symptomatic plexiform neurofibromas we assess if patients are candidate for surgical debulking or MEK inhibitor treatment. For NF-related manifestations that are not covered by our core team, we will refer patients to appropriate specialists.

Our clinic has a team model, so patients are not assigned to an individual physician and will be seen in routine follow-ups by a neurologist, a family doctor or a neurosurgeon.

Please note that we only manage NF-specific issues, and do not provide chronic pain management, nor management of seizures or headaches. We currently do not have a dermatologist nor plastic surgeon within the core clinic, so we do not provide in-house removal of cutaneous neurofibromas. For these the family doctor can refer patient to the appropriate specialist.​​

Meet Our Team

Medical Director: Dr. Carolina Barnett-Tapia, MD, PhD, Neurologist

Staff Physicians or Specialists

  • Dr. Raymond Kim, MD, PhD, Medical Geneticist
  • Dr. Hamid Sadeghian, MD, FRCPC, Neurologist
  • Dr. Juan Idiaquez Rios, MD, MSc, BSc, Neurologist
  • Dr. Suganth Suppiah, MD, PhD, FRCSC, Neurosurgeon
  • Dr. Ryan Thomas, MBBS, CCFP, Family Physician​
Quicklinks
Back to Top