patient and healthcare provider having a chat

Many people rely on the hospital to take care of them when they are most ill but the hospital may not provide everything people need when facing a serious disease like cancer. In the sections below cancer survivors provide insight into what you and your support circle can do to access the supports and services you might need at different stages through your cancer journey.

Pre-diagnosis

Even before your journey with cancer begins you have a role to play. Many people suspect that something is wrong in their body and ask for tests from their family doctor. Survivors suggest paying attention to warning signs and ensuring your family doctor follows-up.

Diagnosis and Treatment Planning

Getting a cancer diagnosis and starting to plan for treatment can be stressful and complex, and it often requires quick decision-making. Cancer survivors have some suggestions for you that helped them through this stage.

Get Access to the Best Health Care

Many survivors talk about the tension they felt when they asked their doctor for a second opinion or referral to a specialty cancer hospital like Princess Margaret Cancer Centre. Survivors have explained that some doctors may take offense at these requests and this made them feel awkward and sometimes prevented them from getting answers.

You have the right to ask questions and talk about access to quality treatment. If your cancer care team does not seem to respect your right to ask questions and express your concerns, think about finding a doctor who shares your views. You should be at ease speaking with your doctor about any doubts in your cancer care. It is best to do this before treatment begins because once treatment starts, changing cancer care providers or hospitals can interrupt or delay your treatment.

Financial Help

Not all cancer treatments are paid for by the Ontario Health Insurance Plan (OHIP) or other health plans and some treatments are costly. Being upfront about any concerns you have with paying for treatment is crucial. Some members of your health care team, such as social workers, know about financial supports that are available to help pay for treatment and speaking to them can make the difference between getting help or not. Social workers can connect you with financial support services like Trillium Drug Program and the Ontario Disability Support Program (ODSP).

Health Information Research & Questions

Given that health care providers have very little time to spend with patients, some survivors suggest coming to appointments prepared. Read what you can about the type of cancer you have before your appointments; prepare a list of questions and write them down so you don’t forget. If you are not the sort of person to ask questions, bring a family member or friend who will ask for you. Do not feel bad about asking questions. If the doctor is too busy, ask if there is another health professional you could speak to (for example, a nurse, pharmacist, or dietitian).

During and After Treatment

Community services and other survivors (peers) have helped many people during and after their cancer treatment.

You can find support through classes and programs for cancer survivors. Finding the right program and support means that you need to be open to the idea that these things may make you feel better. Survivors have told us about the positive effects of yoga, laughing, being around good friends or meeting new people who have or had cancer. What will help you is up to you to explore because everyone is different. Don’t be afraid to try something new.

Many resources for financial help, health information and support classes and programs can be found through the Princess Margaret Patient & Family Library.​

 

Disclaimer: The content of this toolkit is for informational purposes only. The content reflects the views and opinions of people touched by cancer who shared their experience to help other patients and families cope. The views in the toolkit do not necessarily state or reflect those of the University Health Network (UHN). UHN urges you to consult with a qualified health care professional for consultation, diagnosis and/or treatment plans with respect to your medical condition(s). It is not the intention of this toolkit provide specific medical advice.

https://www.uhn.ca/PrincessMargaret/Health_Professionals/Patient_Referral/Pages/dr_referral_psychosocial_oncology.aspx
https://www.uhn.ca/PrincessMargaret/Education/Continuing_Education_Programs/Pages/continuing_education_programs.aspx
Last reviewed: 6/17/2025
Last modified: 6/18/2025 11:33 AM
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