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What to Expect

​​​​​​​You will receive a letter, e-mail and/or a phone call informing you about the time of your first appointment at the Adult Congenital Cardiac Clinic. Usually this appointment will include a series of tests, planned in advance, as well as a meeting with an ACHD cardiologist


What to Bring

  • CD or DVD of your imaging studies/Health Records
    Your referring doctor may give you a CD or DVD of imaging studies such as ​X-rays, CT Scans, or MRIs you may have had done. If so, it is very important to bring this CD or DVD with you. You should also bring or send in advance all records you may have regarding your previous consultations, surgeries and interventions, or let the clinic know in advance how to access these.

  • List of all medications you are currently taking
    This includes prescription medications, over-the-counter medications, vitamin or mineral supplements and herbal remedies.

  • Medications that you need to take
    Appointments can take several hours. Bring with you any medications you normally take during the day.

  • Record of any changes
    Make notes about any changes in your condition that you've noticed since your last visit and bring these notes to show your doctor.

  • A trusted friend or family member
    A friend or family member can give you emotional support and can help you make good choices. They can also help you gather information, take notes and ask questions.

  • List of doctors and hospitals
    Bring a list of doctors you have seen in the past as well as the names of the hospitals where you have been treated. If you have access to your old records including surgical reports and consultations, do bring a copy of all of them, or have this information sent along ahead of you.

  • Questions to ask
    Bring a list of questions to your appointment to help you remember everything you want to ask.

When You Arrive

The first person you meet at the Adult Congenital Cardiac Clinic is the receptionist. To sign in with the receptionist you will need your health card (OHIP card). If you do not have an OHIP card, please bring another form of government-issued photo ID (such as a driver’s license, passport, or other provincial health card).

Measuring Health Equity Questionnaire

You will be given a form to fill out. This form contains questions about your background. We collect this information to find out who we serve and what unique needs you may have.

The form is voluntary and you can choose ‘prefer not to answer’ to any or all questions. However, the information you chose to give us will help us improve the quality of care for you and others.​

How Long Will Your Appointment Be?

First appointments take longer than follow-up appointments.

Your first appointment can take many hours, depending on the number of tests you require. While you are in the clinic, you will likely have an echocardiogram ​and an ECG, and you may have blood tests and other investigations such as an exercise test or other imaging.

Follow-up appointments usually take less time but this will depend on the number of tests you are scheduled for (if any).

We do our best to stay on time. Unfortunately, your appointment may be delayed by unforeseen circumstances. We recommend that you come prepared for delays.

Before You Leave

At the end of your first appointment, the nurse or doctor will give you a contact list for your health care team. If you don't get a contact list, feel free to ask for it.

During your first appointment, you'll be asked if you would like us to communicate with you by email. If you do, we'll ask you to fill out consent form. This form outlines the risks of email communication and how it can be used safely. Many patients find email a convenient way to communicate with the team. Email should not be used in emergencies.

After every appointment, a member of your health care team will tell you about your next visit. Be sure you understand what is going to happen next. For example, know the time and place of your next visit or if someone will call you with this information.

If you are unsure about what your next steps are, don't be afraid to ask a member of your team. We are here to help you.

About Phone Calls

We understand that reaching us by phone can sometimes be difficult. Often our phone lines are busy or are turned over to the message centre so our staff can prepare for clinic visits or help other patients.

We make every effort to return your call within 24 hours. Our staff will try to reach you 2 times. If we are not able to reach you directly and you do not have an answering machine for us to leave a message you may need to call us again.

You can also email us at achd@uhn.ca if you have any questions about your appointment.