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Toolkit By Patients

Disclaimer: The content of this toolkit is for informational purposes only. The content reflects the views and opinions of people touched by cancer who shared their experience to help other patients and families cope. The views in the toolkit do not necessarily state or reflect those of the University Health Network (UHN). UHN urges you to consult with a qualified health care professional for consultation, diagnosis and/or treatment plans with respect to your medical condition(s). It is not the intention of this toolkit provide specific medical advice.

 

A toolkit by patients for patients

The content of this toolkit is based on the experiences of cancer survivors (patients, their families and friends). The term cancer survivor is used in this context to describe anyone affected by cancer, at any stage in their cancer journey. Cancer survivors can offer support that hospitals may not be able to because they have lived with cancer and its effects in their everyday life.

Learn what has helped other survivors in their journey with cancer.

 

About the toolkit

Patient education resources are often produced by health care providers and tend to focus on medical care. However, cancer affects all areas of a person’s life, during and after treatment. To bridge the gap between hospital and home, we asked cancer survivors what helped them cope. Cancer survivors responded in-person and online. Their feedback was sorted into the sections listed above.

In order to learn more from cancer survivors, the sections were used to design break-out sessions at a public engagement event for cancer survivors. Cancer survivors were asked to join the section they could add the most value to. Based on the topic of their session, survivors discussed problems they had and what they did to overcome them. Staff observed and recorded the sessions and drafted these pages based on what survivors shared. The content in these pages was reviewed by survivors who attended the event to ensure the information they wanted to share was captured in order to help others.

Sample feedback from participants who reviewed:

“This is great! You definitely captured everything we talked about including all the subtle nuances and passing remarks. Great job!”

"I appreciate the opportunity to review the draft. More so I appreciate that what we said in our session, WAS HEARD! I feel that this definitely summarizes our group’s contribution.”

Last modified: 2/8/2017 8:50 AM